IMPROVE

MG

MISSION

At Synaticonnect, we recognize that chronic neurological diseases are complex and require ongoing monitoring beyond the limited snapshot provided during a clinic visit. By leveraging digital monitoring and validated disease-specific outcome measures, we aim to capture a high-definition video of patients' overall health status that is easy to understand and can be shared with their healthcare providers and other stakeholders.

Our mission is to empower patients to take control of their health by providing them with real-time, actionable insights into their condition, enabling them to better manage their symptoms and improve their overall quality of life. We are committed to developing innovative solutions that integrate seamlessly into patients' daily routines and connect them with the resources and support they need to achieve optimal health outcomes.

IMPROVE-MG

Myasthenia Gravis

Myasthenia Gravis (MG) is an antibody-mediated autoimmune disease that causes muscle weakness and fatigue. Muscle weakness may present with eye lid drooping, double vision, impaired speech or swallowing, shortness of breath or limb weakness. Recently there have dramatic developments in new treatments for MG. Optimal use of these new expensive agents is unclear. A closer dynamic monitoring of patients symptoms using digital tools will capture clinical improvement or worsening immediately. Improve MG app allows for near continuous monitoring of symptom burden and also allows patients to capture speech dysfunction or weakness. Additionally, symptom and quality of life impairment can be shared by patients with their treatment teams.

Improve CIDP

Coming Soon!

CIDP is an autoimmune neurological disorder that leads to severe weakness, loss of sensation, and difficulty ambulating. While these limitations improve with treatments, patients may continue to suffer fluctuating symptoms and fatigue. Improve CIDP will aim to capture ongoing physical limitations by using validated patient reported outcomes and passive and active mobility measures.

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Privacy and Policy

  • Privacy and Policy

    Synaptic Connect Privacy Policy
    Last updated May 25, 2023
    Company Information
    Synaptic Connect LLC
    Outcome-mg@synatpiconnect.com

    Synaptic Connect LLC provides a consumer-facing mobile application, to help you manage your health and wellness by collecting health-related information from you and providing you with insights and support materials about your conditions. Our goal at Synaptic Connect is to help patients manage their health conditions through the ability to collect all disease-specific information and share it with their physicians.

    This Privacy Policy explains our practices regarding the collection, use, and disclosure of information that we receive through our website located at Synapticonnect.com (the “Site”), and our mobile application, Outcome MG, (the “App”) (collectively, the “Services”). This Privacy Policy does not apply to any third-party websites, services, or applications, even if they are accessible through our Services.

    Revisions to this Privacy Policy. Any information that is collected via our Services is covered by the Privacy Policy in effect at the time such information is collected. We may revise this Privacy Policy from time to time. If we make any material changes to this Privacy Policy, we’ll notify you of those changes by posting them within the Services or by sending you an email or other notification, and we’ll update the “Last Updated Date” above to indicate when those changes become effective.

    Scope. This Privacy Policy applies to all users of our Services including without limitation, site visitors, account holders, and App users (all such users of the Services including account holders and non-account holders collectively referred to as “Users”).

    What Information We Collect.
    Sign Up Information. When you sign up to create an account with Outcome MG, including through the App, we collect and retain certain information that can be used to identify you (“Personal Data”), including, in the case of account creation: your full name, year of birth, phone number, email address, height, weight, and gender.

    Information You Voluntarily Provide. You may also provide certain information to us when you use the Services. For instance, you may choose to manually provide information about yourself, including, but not limited to your existing medical conditions, your health record information, ongoing disease state, and information about health issues and prescriptions you use. Separately you may also choose to enable certain settings on your device that allow our App to receive data that your device collects about you, including, but not limited to, your disease-specific outcome measures, audio or video recordings, and other related measures including sleep, heart rate or mobility data. Similarly, if you already use a separate health or fitness tracking service (e.g. Apple Health), you may choose to enable that service or app to send to Outcome MG or Synaptic Connect information that you previously provided to them, including but not limited to, blood type, gender, date of birth, height, weight, and existing health conditions. You may also voluntarily provide information about yourself when you contact us for support or other inquiries or provide feedback about the Services.

    Location Information. When you use our Services, we may collect and store information about your location by converting your IP address into a rough geo-location or, when interacting with our mobile application, by accessing your mobile device’s GPS or location services, which may provide more precise geolocation information, if you enable location services on your device.

    Information Sent by Your Device. We collect certain information that your mobile device, laptop, or other hardware device sends when you use our Services, including but not limited to IP Address, user agent information, network and connectivity information, device identifiers (where permitted by your operating system), language preferences, user settings, software and operating system names and versions, hardware models, as well as other information about your use of our Services.

    Information Collected Using Cookies and Other Web Technologies. Like many website and app owners and operators, we (and our partners who assist us with analytics, User research, security, fraud prevention, and User support) may utilize automated data collection tools such as cookies to collect certain information from Users of our Services. These tools are used for a variety of purposes, including but not limited to User authentication, account security, analyzing site traffic and trends, and fraud prevention.

    How We Use the Information. Our primary goals in collecting information are to provide and improve our Services, to administer your use of the Services (including your account, if you are an account holder), and to enable you to enjoy and easily navigate our Services. We will use your Personal Data for the following purposes:

    Providing our Services, including helping you track and manage health and medical-related issues, providing personalized health insights and relevant educational material, Communicating with Users, and providing customer support related to Services. Resolving disputes, responding to inquiries, and troubleshooting problems. Managing our everyday business needs, including, but not limited to the following activities: auditing, analytics, fraud prevention, and compliance with applicable laws or regulations. Customizing your experience and otherwise measuring and improving our Services. Sending you relevant emails and communications (including keeping you informed about our products, offerings, and any promotional offers) that might be of interest to you. (If we use your personal information to market to you, you will be able to opt out of such uses). Enforcing our agreements, terms, conditions, and policies, and sending you notices and alerts. We may also use your information for any other purpose disclosed to you at the time we collect or receive your information, or otherwise with your consent.

    that We Share with Third Parties. We will not share any Personal Data that we have collected from or regarding you except as described below:

    Services Providers and Business Partners. We may engage third-party service providers to help us administer, provide, and improve the Services, including but not limited to the following types of partners: web hosting providers, cloud hosting providers, fraud detection services, and customer support partners. These third-party services providers will have access to your Personal Data to perform services on our behalf.

    At Your Request. We may share information about you with third parties if you request we do so, for example, with companies offering promotions or offers through our Site our Services, if you are interested in that offer and request that we share your information.

    Other Third Parties. We may consider sharing de-identified or aggregated data we collect from the use of the Services, including but not limited to de-identified or aggregated health information, de-identified or aggregated location information, aggregate information about the computers or devices from which users access the Services, market trends, and other analysis that we create based on the information we receive from you and other Users.

    Subsidiaries and Affiliates. We share information with our corporate subsidiaries and affiliates to help us provide our Services.

    Your Consent. There may be other circumstances where we will notify you of information that we seek to share with a third party not listed here and will do so with your consent.

    Shared with Web Analytics Services Providers. We use Google Analytics and Firebase, a service provided by Google, Inc. (“Google”), to gather information about how Users engage with our Site and Services.

    Information Disclosed in Connection with Business Transactions. If we are acquired by a third party as a result of a transaction such as a merger, acquisition, or asset sale, or if our assets are acquired by a third party in the event we go out of business or enter bankruptcy, some or all of our assets, including your Personal Data, may be disclosed or transferred to a third party acquirer in connection with the transaction.

    Information Disclosed for Our Protection and the Protection of Others. We cooperate with government and law enforcement officials or private parties to enforce and comply with the law. We may disclose information about you to the government or law enforcement officials or private parties as we, in our sole discretion, believe necessary or appropriate: (i) to respond to claims, and legal processes (including subpoenas); (ii) to protect our property, rights and safety and the property, rights, and safety of a third party or the public in general; and (iii) to stop any activity that we consider illegal, unethical or legally actionable activity.

    Your Choices. We offer you choices regarding the collection, use, and sharing of your Personal Data and we’ll respect the choices you make. Please note that if you decide not to provide us with the Personal Data that we request, you may not be able to access all of the features of the Services.

    Device Permissions. There are various device permissions that our app may request, including for instance, location, notifications, Bluetooth permissions, OS identity verification services (such as Face ID or Touch ID), and (for iOS) access to Apple Health data. You are free to allow, disallow, or revoke any of these permission requests at any time, however, some features of the Services may not function properly without the permission being granted.

    of our Mailings. We may periodically send you free newsletters and emails that directly promote our Services. When you receive such promotional communications from us, you will have the opportunity to “opt-out” (by following the unsubscribe instructions provided in the email you receive). We do need to send you certain communications regarding the Services, and you will not be able to opt out of those communications – e.g., communications regarding your account or updates to our Terms of Service.

    Modifying Your Information. If you want us to delete your Personal Data or your account, please contact us at outcome-mg@synatpiconnect.com with your request. We’ll take steps to delete your information as soon as we can, but some information may remain in archived/backup copies for our records or as otherwise required by law.

    Non-Affiliate Marketing. We do not currently share Personal Data with third parties seeking to market their own products or services to our Users. However, in the event that the company would begin sharing such information for such purpose, Users will be allowed to opt out of such sharing.

    Responding to Do Not Track Signals. Our Site does not have the capability to respond to “Do Not Track” signals received from various web browsers.

    The Security of Your Information. We take reasonable administrative, physical, and electronic measures designed to protect the information that we collect from or about you (including your Personal Data) from unauthorized access, use or disclosure. When you enter sensitive information on our forms, we encrypt this data using SSL or similar technologies. Please be aware, however, that no method of transmitting information over the Internet or storing information is completely secure. Accordingly, we cannot guarantee the absolute security of any information.

    Data Retention. We need to retain the information that users provide us in order to provide our Services, and we retain such information for as long as you maintain your account, at a minimum. We may retain certain information where we are required to do so, in connection with regulatory, tax, insurance, legal, administrative, and other requirements. You may request deletion of your account at any time as provided above. In certain circumstances, we may be unable to delete your account immediately, such as if there is an unresolved dispute, ongoing investigation (e.g. for fraud or misuse), or we believe that we may be required to retain your account for legal reasons. Upon resolution of the issue preventing deletion, we will delete your account as described above. We may also retain certain information if necessary for our legitimate business interests, such as fraud prevention and enhancing Users' safety and security.

    Links to Other Sites. Our Services may contain links to websites and services that are owned or operated by third parties (each, a “Third-party Service”). Any information that you provide on or to a Third-party Service or that is collected by a Third-party Service is provided directly to the owner or operator of the Third-party Service and is subject to the owner’s or operator’s privacy policy. We’re not responsible for the content, privacy, or security practices and policies of any Third-party Service. To protect your information we recommend that you carefully review the privacy policies of all Third-party Services that you access.

    International Transfer. Your Personal Data may be transferred to and maintained on, computers located outside of your state, province, country, or other governmental jurisdiction where the privacy laws may not be as protective as those in your jurisdiction. If you’re located outside the United States and choose to provide your Personal Data to us, we may transfer your Personal Data to the United States and process it there.

    Policy Toward Children. Our Services are not directed to children under 16, and we do not knowingly collect Personal Data from children under 16. If we learn that we have collected Personal Data of a child under 16, we will take steps to delete such information from our files as soon as possible.

    Questions? Please contact us at outcome-mg@synapticonnect.com if you have any questions about our Privacy Policy.